Young People

At Metabolic Support UK, we make it our mission to support people of all ages with Inherited Metabolic Disorders. That’s why we created our programme for young people called NextGen.

The NextGen programme is being developed to provide young people living with Inherited Metabolic Disorders with tailored resources to help them manage their condition and treatment with confidence, as well as a fun and inclusive social space to come together; share their experiences and have their voices heard.

As well as providing services to our core membership age of 12-18 year olds, we also have our Delegates programme for young adults to provide their insight and reflections of growing up with an Inherited Metabolic Disorder and for them to grow as patient advocates.

Feel free to explore the following pages for more information on everything available in NextGen:

Next Gen (ages 12-18):

Information for Parents/Carers:

Delegates (ages 19-25):


If you would also like to sign up to our monthly mailing list, you can do so here:

For further information about NextGen, please contact Sally, our NextGen Project Officer, on or 0845 241 2173.