Young People

At Metabolic Support UK, we make it our mission to support people of all ages with Inherited Metabolic Disorders. That’s why we created our programme for young people called NextGen.

What is NextGen?
NextGen aims to provide specific and tailored support to young people (and their siblings) living with Inherited Metabolic Disorders in all areas of their lives. We also work to champion the voice of young people in the development of treatment and services, including the transition from paediatric to adult services.
Young people can become involved as a NextGen Member if they’re aged 11–18, and we also run a NextGen Delegates programme for young adults aged 19–25 .

How do we support members?

  • Through a dedicated Young Person’s Project Officer who is there to provide help and information to young people, families, and professionals;
  • Through a community where young people can come together, meet new people, and share their experiences;
  • By creating support services, events, and resources based on the feedback of our community and through regular engagement activities and communication;
  • By giving members the opportunity to contribute to our magazine, social media, and online content;
  • By connecting patients with research.

Age 11–18?
As a NextGen member, we’ll keep you updated with any developments related to your condition and offer a wide range of exciting content and resources. You’ll also have the opportunity to take part in all of our events such as the NextGen conference and feedback activities like our membership surveys or workshops, and to contribute to our magazine, blog, and online content. You can contact us at any time to let us know your ideas, share your story, or to ask for help with anything you need. Plus let us know what YOU want to see and we’ll do our best to make it happen! Download our detailed Information for Members sheet for more information on NextGen.

Want to join our NextGen community? Click here:
 https://forms.gle/jUK6WH9XAij9yoVj7

Age 19–25?
NextGen Delegates has been created to capture the experiences and insights of young adults, who have experienced the challenges of growing up with a condition and of transitioning to adult services, as well as to support you with your next steps in independence. We’ll keep you updated with any developments related to your condition and offer a wide range of content and resources. You’ll also have access to our events such as the NextGen conference and feedback activities like surveys and workshops. You can contact us at any time to let us know your ideas, or for help with any concerns. Download our detailed Information For Delegates sheet for more information on becoming a Delegate.

Want to become a NextGen Delegate? Click here: https://forms.gle/jUK6WH9XAij9yoVj7

Parents
We understand that you may want to know more before your young person takes part in NextGen. You can download our Information for Parents sheet to find out more. You can also get in touch at any time using the details below, to talk about the programme or any way that we can support you and your family. If you would like to give permission for a young person to take part in NextGen, you can do so here.

Want to find out more?
You can now follow us on Instagram or sign up for our dedicated monthly newsletter. Our Young Person’s Project Officer, Sally, is also happy to help with all enquiries. If you have any questions about NextGen or would like to make a suggestion, please email Sally on sally@metabolicsupportuk.org, call 01244 207 581 (Monday to Friday, 09:00 – 16:00),  or complete the form below. We’ll get back to you as soon as possible.

NextGen Enquiry