Webinars

CORONAVIRUS AND INHERITED METABOLIC DISORDERS WEBINAR SERIES

During the Coronavirus crisis, we are developing a series of informative webinars in collaboration with specialists and patient organisations, to address the concerns of our patient community during this unprecedented time.  Our aim is to empower, collaborate and advocate to ensure that the needs of patients and families are are met during this crisis and on the road to recovery.  Many thanks to all speakers and contributors for sharing their valuable time and experience with our community.

WATCH NOW: recordings of previous webinars

Covid-19 and Inherited Metabolic Disorders (recorded 11th June 2020)
The second in the series, focusing on how those affected by Inherited Metabolic Disorders (IMDs) may be impacted by the coronavirus (covid-19) outbreak as the lockdown restrictions are eased.

The webinar was organised by patient organisations and a panel of metabolic experts, with the aim of addressing questions and concerns raised by the IMD community.

Inherited Metabolic Disease & Coronavirus (COVID-19) Webinar [11th June 2020]

The following webinar, the second in the series, focuses on how those affected by inherited metabolic diseases may be impacted by the coronavirus (COVID-19) outbreak.The webinar was organised by patient organisations working in the field of Inherited Metabolic Diseases (IMD) with the aim of addressing questions and concerns raised by the IMD community.The webinar was recorded live on Thursday 11th June; you can access the recording via the link below. Many questions were received during the webinar, we will aim to answer these in the coming days and to update the information shared, in line with current advice and guidance.Many thanks to all speakers and contributors for sharing their valuable time and experience with our community.#COVID19 #Webinar #LSDCollab #MetabolicSupportUK #BIMDG See less

Posted by UK LSD Collaborative on Thursday, 11 June 2020

 

Facing Coronavirus Together: Tapping into the Resilience of the Rare Disease Community (recorded 21st April 2020)

In this webinar we discuss facing coronavirus together as a rare disease patient community and share tips on coping during this unprecedented time as a patient or parent. Presented by Metabolic Support UK, Duchenne UK and Clinical Psychologists Dr Lynne Aitkenhead, Dr Emma McGibbon and Dr Penny Andreou.


Covid-19 and Inherited Metabolic Disorders (recorded 23rd March 2020)

This webinar focuses on how those affected by Inherited Metabolic Disorders (IMDs) may be impacted by the current coronavirus (covid-19) crisis.  The webinar was organised by patient organisations working in the field of IMDs, and was open to patients and families to address questions raised by the outbreak of novel coronavirus (covid-19).