During the Coronavirus crisis, we are developing a series of informative webinars in collaboration with specialists and patient organisations, to address the concerns of our patient community during this unprecedented time.  Our aim is to empower, collaborate and advocate to ensure that the needs of patients and families are are met during this crisis and on the road to recovery.  

Our next webinar, providing an update on Coronavirus and Inherited Metabolic Disorders will take place on Thursday 11th June 2020.  More details to follow.

WATCH NOW: recordings of previous webinars

Facing Coronavirus Together: Tapping into the Resilience of the Rare Disease Community (recorded 21st April 2020)

In this webinar we discuss facing coronavirus together as a rare disease patient community and share tips on coping during this unprecedented time as a patient or parent. Presented by Metabolic Support UK, Duchenne UK and Clinical Psychologists Dr Lynne Aitkenhead, Dr Emma McGibbon and Dr Penny Andreou.

Covid 19 and Inherited Metabolic Disorders (recorded 23rd March 2020)

This webinar focuses on how those affected by Inherited Metabolic Disorders may be impacted by the current coronavirus (covid-19) crisis.  The webinar was organised by patient organisations working in the field of Inherited Metabolic Disorders, and was open to patients and families to address questions raised by the outbreak of novel coronavirus (covid-19).