Voice Up Project

Voice Up is here for you to share and access stories from real young people, like you, living with an Inherited Metabolic Disorder. From managing your symptoms and moving to adult services to travel, higher education and making friends – whatever it is that matters to you, our Voice Up community will bring you insights and advice across podcasts, videos, and blogs, as well as the opportunity to share your own experiences.

Who can take part?

We’re currently looking for participants between the ages of 16 and 25 who are living with an Inherited Metabolic Disorder either through their own diagnosis or in supporting a sibling, friend, or loved one.

If you’d like to register to take part, you can do so here: https://forms.gle/nXptKtkGwHdwtNHP7

For our top tips on recording videos, see this page: Voice Up! Home Video Top Tips

If you don’t currently meet this criteria but feel that you have something to contribute, please get in touch with Sally on sally@metabolicsupportuk.org