Travelling Abroad

We all need a little rest and relaxation, yet many patients and families we support believe it is too difficult to travel abroad when you are affected by an Inherited Metabolic Disorder.  There is a lot more to think about when travelling, but with the right planning and preparation you can enjoy quality family time on a holiday abroad.

Here are our top travel tips and what support we can offer to you when planning your trip.

Leaving on a jet plane
Never flown before?  The travel experts at tryb4ufly offer information and practical advice on all aspects of flying with a disability.  They even hire out equipment to use on the plane to make your flight more comfortable.

Specialist centres
It’s always reassuring to know that help is at hand in the place you are staying.  We can advise you on the nearest metabolic specialists and services to your destination, and what to do in case of an emergency.  We can share recommendations of holiday locations based on the experiences that our community have shared with us.  If you are planning a holiday or have a trip booked, get in touch with our Core Services team.

Translation service
Avoid worry and confusion by accessing our translation service, available exclusively to Friends of Metabolic Support UK.  We can arrange for your disorder summary and, where necessary, emergency protocol to be translated.

What to pack

  • A letter from your metabolic consultant detailing your condition, listing any medications or prescribed food
  • A fit to fly letter (if required) which you can get from your GP
  • A copy of your prescription list as proof that the medicines you are carrying are prescribed.  All medicines must have the pharmacy sticker on them, with the name and date of birth clearly marked
  • Your emergency protocol information
  • All the contact numbers for your UK metabolic team in case you need advice while you are away
  • Contact details for the nearest metabolic centre at your destination
  • Your travel insurance

Travel Insurance
One of our most frequently asked question from patients and families living with Inherited Metabolic Disorders is ‘where can I get suitable travel insurance so that I can travel abroad’

Inherited Metabolic Disorders are complex conditions, affecting patients in many different ways.  It can be difficult to fund suitable, affordable cover when it comes to getting travel insurance with a pre-existing condition that is not widely recognised.  As Inherited Metabolic Disorders are so rare, it is difficult for travel insurers to understand the specific needs of patients.

With the help of our metabolic community, we have have put together the following information to help you find the right travel insurance policy to suit you and your individual needs.

Contact as many insurance companies as you can, as the costs and criteria can be very different.  It may be easier to explain your condition with insurers by telephone.  Make sure that you declare all details of your Inherited Metabolic Disorder, failure to do so may result in the policy being declared invalid should you need to make a claim

Tried and Tested Travel Insurance Companies
The following companies have been recommended by patients and families travelling with Inherited Metabolic Disorders.  Please note that Metabolic Support UK does not endorse any specific company and has no direct experience of them.

JD Travel Insurance
0208 290 3826

Worldwide Travel Insurance
01892 833338

All Clear
0845 250 5350

Free Spirit
0845 230 5000

Insure and Go
0844 888 2787

Insurance with
0845 2307159