When you have an Inherited Metabolic Disorder, going on holiday can be a little more complicated with having to consider transporting medication, supplements and managing your condition in a new place! This summer, our guest blogger, Chloe Easton (who has Phenylketonuria (PKU)), is holidaying in Cornwall for a whole month! In the second part of Chloe’s guest blog series, she is updating us on how it’s all going!
If you didn’t get the chance to read my previous post, here’s a brief summary: my name’s Chloe. I’m 21 years old and live with Phenylketonuria (PKU). Currently, I’m in Cornwall and am here for an entire month on my own!
My journey down here on the train was an extremely long one! I spent just over seven hours travelling on trains but it couldn’t have gone any smoother! (Side note: it’s also one of the most beautiful train journeys I have ever taken. So, I would definitely recommend giving it a go if you haven’t). When I finally did arrive at my destination and checked into my holiday apartment, my boxes of supplement were already there waiting for me. You may remember that in my previous post I spoke about how I was planning to get my supplies delivered straight to Cornwall. Even though my Mum and I undertook some careful planning, I was still so nervous that something was going to go wrong. So, I’m very relieved to say it was a success! If you are heading on holiday this summer, I would definitely recommend speaking to your doctor to see if anything similar can be done for you because this did save me huge amounts of hassle.
This is a trip I had highly anticipated for many months and now it’s finally here it’s just flying by, which makes me even more determined to make the most of every moment. This hasn’t always been an easy task, as I have not had the greatest start with the weather. The majority of my days here so far have been either cloudy, rainy or a mixture of the two. I guess I shouldn’t expect anything less from a British summer! Despite this, I have still managed to get out and find ways to keep myself entertained. I’ve quite enjoyed sitting and writing in various cafes and taking trips to Truro and Falmouth to wander round the shops. I recently took a coach trip and was lucky enough to visit Minack Theatre and Land’s End! I’m very grateful to be here and pretty happy with how I’m choosing to spend my time. However, I won’t lie, being here on my own can have its tough moments, as it can be quite lonely at times. But I was always fully expecting this to happen. On the flip side, I absolutely love that I have complete freedom of deciding how I spend my time, as I have only myself to worry about. It depends on how you look at it, I guess!
In terms of managing my diet on my own, this is something I have become accustomed to because of university and, if anything, this trip is just filling me with more confidence, as I am completely on my own here. Instead of my parents being just an hour’s journey away from me, they are now a good eight hour’s journey in the car – they can’t really pop by to see me if I need! This is quite an intimidating thought, but at the same time it’s a great learning curve for me and I feel sure that I will come home from this trip as a stronger person.
Thank you to Chloe for sharing an update on how her Cornwall trip is going! We’re so glad you’re having a great time and that everything has gone to plan (aside from the weather!)!
Chloe also has her own personal blog where she shares her experiences of living with PKU. You can read her blog here: https://t.co/GaNPoBcy7X
If you would like some advice on travelling with an Inherited Metabolic Disorder, please see the following page https://www.metabolicsupportuk.org/travel/ or contact our Core Services Team on firstname.lastname@example.org or 0845 241 2173.