World Friendship Day: Connect with the Metabolic Community!

Friendship is very important to Metabolic Support UK. We see the members of our community as very special friends to us, and look to support our patients and families in every way we can. We similarly make it our mission to connect our community through multiple projects and to reduce the isolation often found in the rare disease world. On World Friendship Day, we want to share how you can become an even better friend of Metabolic Support UK and how you can connect and find friends within the Inherited Metabolic Disorders world!


Metabolic Connect

Metabolic Connect is one of our most important programmes and is where we connect families and patients with similar conditions with each other. We often hear that being connected with someone else who knows exactly what you’re going through is completely invaluable and many people who have joined this scheme have met lifelong friends. To meet others with the same condition as you, please see the following link:

Friendship Scheme

Our Friendship scheme is our regular giving scheme and includes many great benefits, including the receipt of our quarterly magazine, Metabolic Matters; discounts on translations of your disorder if you’re going on holiday; and one of our new health passports! By becoming a Friend of Metabolic Support UK, you are directly helping us support more and more families and patients with Inherited Metabolic Disorders. Plus, our magazine can keep you up-to-date with the latest developments happening in the Inherited Metabolic Disorders world and show how you can get involved with Metabolic Support UK and our special community! Sign-up to our Friendship scheme here:



Become a Community Ambassador and help us raise awareness of Inherited Metabolic Disorders! We launched our Community Ambassador scheme last year and now have 8 amazing Ambassadors spreading the word about Inherited Metabolic Disorders and fundraising for us. By signing up to our Ambassador scheme, you can make a real difference by connecting the Inherited Metabolic Disorders community in your local area; fundraising and helping us support more and more families and patients with Inherited Metabolic Disorders; and have the opportunity to meet others with Inherited Metabolic Disorders! For more information on our Ambassador scheme, please see the following link:



Our fundraisers are absolutely invaluable. We love seeing what ideas our community fundraisers have, including running marathons, half marathons and 10Ks; climbing huge mountains; doing fantastic bake sales and much more! Most importantly, we are inspired by our community’s efforts to support patients and families with Inherited Metabolic Disorders. Every penny fundraised helps us reach out to more and more families and patients with Inherited Metabolic Disorders and manage projects aimed at supporting our special community. By fundraising, you are helping support our incredible community, and you may even make a few more friends with getting others involved in your fundraising activities! If you would like some support with a fundraiser or some ideas for your first fundraiser, get in touch with our Marketing and Fundraising Officer, Maggie, on


There are plenty of ways to become an even better friend of Metabolic Support UK and to make new friends within our special community. We hope these ideas can help inspire you!

For more information on any of our projects and to see how we can best support you, please contact us on or 0845 241 2173.