Resource Hub

Welcome to our Resource Hub! Our Resource Hub contains lots of tips on how to manage your condition and support that you may be entitled to. Please click on the titles below for more information on each category.

Attending Hospital Appointments


Bereavement of a Child

Managing your Mental Health with an IMD

Metabolic Centres

Transplants and Splenectomies

Patient Organisations and Online Support

Travelling with an IMD

UK Newborn Screening

If you would like any further support, please email us on