Volunteers needed for a research study investigating disease progression and quality of life in X-Linked Hypophosphataemia (XLH).
-Have a diagnosis of XLH
-Be aged 28 or over
-Be able to read and converse in English
Participants will be asked to:
-Take part in a study interview discussing their experience of living with an XLH diagnosis, taking approximately 1 to 1.5 hours.
-Complete a series of quality of life questionnaires taking approximately 30-40 minutes each time.
This study involves a total of 5 telephone calls over 12 months with a researcher from Medialis (an independent research company https://medialis.co.uk/).
If you would like to receive more information on the study, please email Jess on firstname.lastname@example.org