Rare Diseases and the General Election

The Department of Health and NHS England recently made a commitment to develop an implementation plan for the UK Strategy for Rare Diseases in England, which is a really positive outcome for those affected by Inherited Metabolic Disorders.

With the General Election taking place on 8th June, we want to make sure that your voices and needs are represented in Parliament, ensuring this commitment becomes a reality under the next Government.

Rare Disease UK have launched a Pledge for Patients campaign, calling on prospective candidates to pledge their support for people affected by rare, genetic and undiagnosed conditions.


In order to ensure that those affected by rare conditions get access to the right care and treatment after the next General Election, we need your help. We’re asking patients with rare, genetic and undiagnosed conditions to write to their prospective parliamentary candidates (the people who hope to be elected as Members of Parliament) and ask them to sign our pledge card, agreeing to work on behalf of their constituents who are affected by these conditions during the next parliament. By signing the pledge card we will have a signed commitment that we can use to hold each elected member to account. All the information, including template letter and help finding candidates, can be found on the Pledge for Patients website.  Candidates can sign the Pledge for Patients here.

Please add your voice to the campaign and encourage your prospective MPs to sign the pledge!