Metabolic Support UK (formally known as Climb – Children Living with Inherited Metabolic Diseases) is a charity registered in England and Wales (1089588) in Scotland (SC044634) and a Company Limited by Guarantee (4267454)
Your privacy is important to Metabolic Support UK This privacy statement provides information about the personal information that Metabolic Support UK collects, and the ways in which Metabolic Support UK uses that personal information. This privacy statement aims to cover all of our activities. Metabolic Support UK may change this policy at any time in line with legislative changes or changes to the policy of the organisation. Please check our website from time to time to ensure you are aware of any changes. Metabolic Support UK adheres to the Principles of the Data Protection Act (DPA) 1998 (UK) and relevant European Union Data Protection Directives, including the forthcoming General Data Protection Regulation (GDPR).
In this policy document:
“we” or “Metabolic Support UK ” means Metabolic Support UK
“you” means any person(s) about whom we collect non-personal and/or personal
What information do we collect?
We collect and store information about those who access Metabolic Support UK’s services, in order to deliver support and advice to you (the beneficiary), to measure our impact as a charity, and to deliver financial transparency to those who raise funds for us and the Charity Commission. We work to secure explicit consent to contact you to provide support, advice and information about Inherited Metabolic Disorders, and provide future updates which may be of interest to you.
Your contact with us
If you contact us by telephone, e-mail, letter or via the contact form on our website, we retain a record of your contact to help us respond to your enquiries and provide future support and advice. We only collect this information if you provide it to us and we do not hold your information for longer than is necessary.
Using our website
Like most websites, our server gathers limited, non-personal information about you during a session, including the IP address and domain name from which you are accessing the server and your browser configuration. This information is only used to help us improve the content, design and performance of the site, and is not linked to the identity of any individual user.
Membership and mailing lists
In order for our members to receive our magazine, we hold records of their names, addresses, telephone numbers and e-mail addresses. However, we only collect this information from you if you choose to provide it to us.
We hold contact details for those who have ‘opted in’ to receive information from Metabolic Support UK which may be in relation to developments, research, events, fundraising and updates on our work with Inherited Metabolic Disorders. We do not pass your information to third parties without your consent. You may choose to stop receiving information at any time by contacting us (details below).
We collect the personal information of individuals who undertake fundraising activities for Metabolic Support UK , or take up charity places for Metabolic Support UK ’s fundraising charity events. This is collected to support you in your fundraising efforts, and to monitor success.
Social media and blog
Metabolic Support UK is active on Facebook, Twitter and Instagram. We do not collect data from these social media sources, though we will endeavour to answer enquiries and messages directed to us through these sources. All messages sent to Metabolic Support UK in this regard are governed by the privacy policies of the chosen platform. We may post and share stories and testimonials as provided by you, but will only do this with your prior consent.
How long do we keep your information?
We keep your information for as long as is necessary to deliver advice and support effectively to you, and track our charity impact. Your data will be retained securely, and should you wish, you may at any time ask us to destroy any personal information that we hold on you so that you receive no further information or contact from us.
Who has access to your information?
Our members of Metabolic Support UK ‘s staff have access to the personal information as provided by you. As detailed above, we may use third parties to facilitate fundraising services on our behalf, including Charity Checkout, Virgin Money Giving, and Just Giving. Those parties only collect and hold the information they need to deliver the service, though data is held in accordance with their own privacy policies. We will not share your information with any third party without your consent.
We publish information leaflets, magazines and newsletters for our subscribers and those that interact with Metabolic Support UK . From time to time we may use case studies, stories, quotes or images of patients, families and supporters as provided to us by you. We never publish any information or image without clear consent from those concerned. We might use
quotes in our promotional materials, publications and conferences but will always ask your permission if anything in the quotation is identifiable.
Accessing the information we hold about you
You have the right to request a copy of the information held about you by Metabolic Support UK in order to amend, update, add to or delete it at any time. Should you wish to restrict the use of your personal information, please contact us (details below).
We have implemented technology and policies to protect your privacy from unauthorised access and improper use and will review these measures on a regular basis. While we cannot ensure or guarantee that loss, misuse or alteration of data will not occur, we shall endeavour to prevent this.
Links to other websites
protection or privacy of any information you provide to a third party.
Any questions about privacy?
If you have any questions or concerns about how we protect your personal information, please contact us.
Telephone: 0845 241 2173
Post: Metabolic Support UK, 5 Hilliards Court, Sandpiper Way, Chester Business Park, Chester, CH4 9QP