Our Patients as Educators project is where you can help us raise awareness of Inherited Metabolic Disorders through our up and coming patient podcast channel, or doing enlightening talk videos or an interactive blog – the choice is yours!
By joining our Patients as Educators project, you can help us raise awareness of what life with an Inherited Metabolic Disorder is really like, from first symptoms through to diagnosis and beyond.
We are looking for both patients and parents to take part in this project. So, if you would like to hear more about this project and see how you could share your story and help us raise awareness, please complete the form below. Once we have received your form, we will be in contact to discuss the next steps.