NextGen Conference

On Saturday 12th October 2019, it is Metabolic Support UK’s Annual Conference. At this year’s Annual Conference, there will be NextGen sessions running throughout the day for those aged 12-25. The NextGen sessions will be a great opportunity to meet other young people with Inherited Metabolic Disorders and to hear how you can be the best patient advocate for your condition. Please see below our agenda for this year’s NextGen conference.

*To book your place onto our NextGen conference, please see the following link: https://www.metabolicsupportuk.org/conference/ and request a place on the NextGen session. Please note the NextGen sessions are only open to young people aged 12-25 (including siblings of patients with Inherited Metabolic Disorders) and NOT to parents of young people. If parents of young people have any questions on the NextGen sessions, please contact sally@metabolicsupportuk.org*

Agenda

10:00 – 10:30: Registration and Refreshments

10:30 – 11:00: Introduction to NextGen and the day’s agenda (30 mins)

11:00 – 11:30: Talk by Laurence Woollard on positive adherence to treatment for young patients – with Q&A (30 mins)

11:35 – 11:45: Break (15 mins)

11:45 – 12:15: Talk by Elaine Murphy, Metabolic Consultant, on adult treatment and what to expect – with Q&A (30 mins)

12:15 – 13:05: Talk by Lynne Aitkenhead, Clinical Psychologist with the BIMDG, about Mental Health and coping mechanisms – with Q&A (50 mins)

13:05 – 14:00: Lunch (55 mins)

14:00 – 14:30: Demonstration of Health Passports and MyMeta App, with feedback (30 mins)

14:30 – 15:30: Young persons’ workshop on NextGen (1 hour)

15:30 – 15:50: Reflections & next steps (20 mins)

*Please note the agenda is subject to change but we will inform you of any changes before the day.*

*To book your place onto our NextGen conference, please see the following link: https://www.metabolicsupportuk.org/conference/ and request a place on the NextGen session.*

For further information on the agenda or anything else, please don’t hesitate to contact our Young Person’s Project Officer, Sally, on sally@metabolicsupportuk.org or 0845 241 2173.