Introducing Metabolic Support UK (formally known as Climb)
As you may know, we have been working hard over the past year, listening and reviewing all of the services that we offer and strengthening our understanding of the key issues for patients living with Inherited Metabolic Disorders (IMDs), and their families, today.
This consultation, including several focus groups, discussions and interviews with patients and families of all ages, as well as medical professionals, ot…her patient organisations and key decision makers, has helped with the development of an exciting new strategy and business plan. This will enable us to build upon the areas that will make the most impact for our IMD community . It will help us to improve the services that we deliver to you, as well as ensuring your voices are heard, and raising much needed awareness of IMDs.
The consultation highlighted the need for us to provide more practical support, and more opportunities for you to connect with and support each other. We heard about the daily challenges and how, for many patients and families with IMDs, life is often a struggle and fight. You also told us that you want us to do more to fight on your behalf; for research, access to treatments and services, improved diagnosis and better care. All of this links closely with our continuing vision – what we are working towards for you; a better life for those living with Inherited Metabolic Disorders and their families.
We are confident that with a more descriptive and inclusive name, and fresh new look, we will be able to better communicate what we do, reaching more people and making it easier for patients, families, professionals and other organisations to find and engage with us. Importantly, we want to communicate that we are your patient organisation, working for you, and with you.
If you have any questions or would like any further information please get in touch!
PS: If you haven’t yet taken part in any of our consultations, there will be plenty of opportunities in the future as we plan to continue working collaboratively with our friends, supporters and partners to ensure that we are delivering the best services to you!
1st May 2018