Last November, we launched our Community Ambassador programme. We now have 8 amazing Ambassadors, who are supporting the Inherited Metabolic Disorder community in their local areas, enabling us to reach many more patients and families. They are also helping us spread the word by raising awareness and fundraising. Today, we’d like you to meet our Ambassador, Tanya Brindle!
Why did you want to become an Ambassador for Metabolic Support UK?
To make a difference, raise awareness, support and advocate for others, and to mostly show Paige, my daughter, who lives with Salt Wasting Congenital Adrenal Hyperplasia (SWCAH) that life need have no limitations.
How are you planning to raise awareness about the services Metabolic Support UK provide?
By hosting fundraising events in my local area and participating in meet and greet/patient days at Royal Manchester Children’s Hospital.
Where is the strangest place you have raised awareness about Inherited Metabolic Disorders?
Whilst running in an event and raising money for Metabolic Support UK.
What’s the hardest thing about living, or living with someone, with an Inherited Metabolic Disorder?
Never being able to switch off or relax and always having to be one step ahead. It can be really nerve-wracking not knowing when the next crisis or illness will hit.
In the Inherited Metabolic Disorder community, who has had the greatest impact on you?
Our London Marathoners! I mean, it is a personal life time goal. However, I need years more training to run that. So, don’t go signing me up yet haha!
What’s in your fridge?
The mundane dieting stuff! I have a lot of Slimming world friendly foods with a tray of syns…..which is mostly chocolate!
What’s your favourite comfort food?
“Come on, I’m a woman!” It has to be CHOCOLATE and a glass of gin!
Strictly Come Dancing, I’m a Celebrity or Great British Bake Off?
100% I’m a Celeb!
If you were given an extra hour today, how would you spend it?
I want to say sleep but that would be a lie as I rarely sleep! So, I’d probably just have some well-deserved “me” time.
What was the last film you watched?
Dear John…I mean who doesn’t like a bit of Channing Tatum!
Caribbean beach or snow top mountains?
Neither, I’m a Majorca girl and a touring caravaner, who enjoys exploring the secrets of the British countryside.
What would be a good theme song for your life?
Greatest Showman – This is me.
If you or your child lives with an Inherited Metabolic Disorder and would like to connect with Tanya, please get in touch with Team Metabolic’s Julie on firstname.lastname@example.org