A Message from our Chair, Nigel Eaton
When I became Chairman in April 2000, I promised to “work my hardest to ensure Climb goes from strength to strength”. So much has happened over those years, changes in leadership with two Chief Executives, a healthy rotation of Trustees – 10 out, 5 in, staff changes, two relocations and a new name and brand to mention a few. Some things have remained constant, our commitment to put families at the heart of everything we do, a commitment to hold conferences, our Service of Celebration, and to fund research. There have been some tough times over the years, but I believe we are in a much stronger position now. Metabolic Support UK has a fantastic future, we have a much better understanding of what you want and a focused strategy to deliver it.
It has been a privilege and honour to lead the Charity, to see it grow and prosper, to see the impact it continues to have on our families.
Elin Haf initially qualified as a Paediatric nurse before specialising in paediatric drug development and undertaking a PhD, developing new outcome measures for a subset of neuro Lysosomal Storage Disorders. Elin Haf brings over twenty years of clinical, academic, regulatory and industry expertise having spent six years working for the European Medicine Agency before founding Aparito a digital health company specialising in providing remote patient monitoring for patients living with rare diseases. Elin Haf continues in her role as CEO at Aparito.
I am proud to hand over the reins to Elin Haf whose knowledge and expertise will take us further on the journey and make Metabolic Support UK an even stronger voice “in our common fight”, to provide the right support, advocacy and education to achieve better outcomes for our metabolic community.