On Friday 25th May 2018, Jess Allamby, an incredible supporter of Metabolic Support UK, held a rainbow ball in memory of her son Ethan and to raise money for Metabolic Support UK. The Metabolic Support UK team were invited to attend this wonderful event and were so pleased to be there and to support Jess.
The rainbow ball took place at The Bridge Hotel in Wetherby, which was a beautiful location for the event. When guests arrived, they had their picture taken in front of the hotel and were treated to a welcome drink. All guests were also given a rainbow band, which was tied around their wrists to mark the special occasion. Plus, it helped keep everyone in theme with the beautiful rainbow decorations on the tables – it all looked stunning!
Jess made a speech at the beginning of the night to thank everyone for supporting the event, which was in memory of her son Ethan, and marked what would have been his fourth birthday. Ethan was born with Ornithine Transcarbamylase (OTC) Deficiency and very sadly passed away aged 10 months. Metabolic Support UK have been supporting Jess and her family from Ethan’s diagnosis to the current day. After Jess’s speech, she invited the Metabolic Support UK team to talk about the work we do and how we help support families and patients with Inherited Metabolic Diseases.
After the speeches, guests were treated to an amazing three course meal! The meal was delicious, and was followed up by an auction and raffle, with lots of fantastic prizes on offer! So, there were plenty of happy people after the wonderful meal and the prize giving!
With some very happy guests, people were invited to hit the dancefloor, which started with some great tunes from a Yorkshire based swing band, GT & the Speedways. The band certainly got everyone up and dancing. Then once the band had finished playing, a DJ took to the floor. So, everyone was plenty able to dance into the early hours!
After a wonderful night, the last song, ‘Let it Go’ from Frozen, had to be dedicated to Ethan. Everyone was invited onto the dancefloor for this song and to remember the main reason we were all at the event.
The ball was incredible from the wonderful food and music, to Jess’s amazing hosting skills. In all, it was a very special way to remember Ethan and to commemorate his life.
The Metabolic Support UK team feel very honoured to have such an amazing fundraiser and advocate in Jess. The night even raised an incredible £1,216!! Thank you Jess and all your friends and family for your support. You are inspirational to us all, and your amazing fundraising efforts will help us support more families and patients with Inherited Metabolic Disorders.
If you want to fundraise, like Jess, for Metabolic Support UK, please get in touch with Maggie on firstname.lastname@example.org, and we’ll do our best to help you organise your first fundraiser!