When you have an Inherited Metabolic Disorder, going on holiday can be a little more complicated with having to consider transporting medication, supplements and managing your condition in a new place! This summer, our guest blogger, Chloe Easton (who has Phenylketonuria (PKU)), is travelling to Cornwall for a whole month! In the first part of Chloe’s guest blog series, she explains her reasons for making the big trip and the preparations she’s made to allow her trip to run as smoothly as possible!
My name is Chloe. I’m 21 years old and I have Phenylketonuria (PKU). I’m currently preparing to embark on a very exciting journey, which is now just around the corner. At the beginning of June, I am headed to Cornwall for an entire month, on my own! I think some people, to whom I have told my plans were surprised to learn that I am travelling that far alone (I am from South Yorkshire. So, it’s going to be a long journey!), but to me this is a dream come true and something that has been on my bucket list for many years now.
I feel as if I have partly grown up in Cornwall, as every year, without fail, my family and I have holidayed along the Cornish coast and so over the years I have grown to absolutely adore the place. If you have never been to Cornwall, I would say that you absolutely must experience it! It’s such a beautiful part of the UK and (bonus) if you’re lucky enough to have some sunshine it can feel like you’re abroad. It is my true dream to one day live down there permanently and for many years now I have always wanted to spend a long length of time there if I could, even for just a summer. Now, having graduated from university and no real attachments holding me back, this felt like the right time to go for it. I never imagined that I would do it on my own and as it approaches nearer, I can’t quite believe that it’s going to happen, but I am certainly excited at the prospect of having so much time to myself in a place that I love.
How do I plan to spend my time there?
Many people have asked what it is I’m actually planning on doing when I get there. Initially I was going to work, but then my parents pointed out that why would I travel seven hours down the country after working so hard all year to save up money to then go back to work? I realised they were right – this is something I have truly always wanted to do. So, I intend to relish every moment of it that I can. I am staying somewhere that is extremely familiar to me, but I will most likely be venturing out to explore some new places whilst also spending my time bodyboarding, surfing and writing!
How do I plan on managing my metabolic condition?
Whilst I don’t like to let my metabolic disorder (PKU) get in the way of things, I have had to undertake some careful planning to ensure that I am still able to enjoy my trip as well as manage my diet. In terms of tackling my diet on my own, I feel somewhat prepared for this because of university. Three years of living away from home has given me the valuable experience I’ll need. But I have had other more challenging factors to contend with – like how I intend on transporting an entire month’s worth of supplement (along with all my belongings) down to Cornwall on the train. I am not the best at packing “light” anyway, but my PKU certainly doesn’t make this any easier. However, after speaking with my dietitian, we came up with the solution of having my supplies actually delivered to me down south. All I had to do was contact the holiday company in Cornwall to ask for their permission to have my medication delivered to their offices, with which they had no issue. My dietitian then spoke with the company who deliver my supplement and arranged this with them. Now, all that is left to do is cross my fingers and hope it all works out as planned. Although, I am going to be taking a few days’ worth of supplement with me just in case there are any issues.
Thank you to Chloe for sharing her experiences of preparing for her big trip away! We hope you have an amazing time and we can’t wait to hear how you get on! Chloe will be updating us on her adventures half-way through her stay on our blog.
Chloe also has her own personal blog where she shares her experiences of living with PKU. You can read her blog here: https://t.co/GaNPoBcy7X