It’s been quite a year for the Metabolic Support UK team! Many changes have been made but most importantly, we have been able to reach more and more patients and families this year with a new more inclusive name; a larger team to travel across the UK to meet patients and families; and an incredibly supportive pool of fundraisers, who have enabled all these positive changes to happen.
We’re very proud of all we’ve managed to achieve for our IMD community this year and here you can see some of what Team Metabolic has achieved in 2018!
New Name, New Era
In May, we re-branded to Metabolic Support UK to be more inclusive to the wider IMD community and to allow people to find us more easily. With a new name and identity, we have reached more and more patients this year – around 600 in total! We have had a presence at conferences and events across the UK and been able to raise awareness about Inherited Metabolic Disorders with healthcare professionals, the public and students. New projects have been launched in line with this new name and we’re excited to reveal more exciting projects to you in 2019!
Metabolic Disorders Awareness Week
Metabolic Disorders Awareness Week was incredible! This year, we launched our Metabolic Mile campaign and we loved seeing your miles and how supportive everyone was of each other! Special mentions ought to go the Urea Cycle Disorder Group, who created a video about their Metabolic Mile, which reached 6,800 people(!!), and Sam Marshall and John Burniston, who ran an incredible Metabolic Mile fundraiser in honour of their son, Oscar, who is bravely living with MCADD (Medium-chain-acyl-CoA dehydrogenase deficiency), which raised an astounding £4,107.50! All your efforts to support Metabolic Disorders Awareness Week were amazing and we’re incredibly appreciative of your enthusiasm and drive to support this special week.
Your fundraising didn’t however stop at the Metabolic Mile! 15 fantastic supporters of Metabolic Support UK took to the streets of London for the London Marathon in April! It was a hot one this year – 24 degrees! – and we are in awe of each runner’s motivation to get to the finish line and all the amazing fundraising they did! We’re also incredibly proud of Duncan Campbell, who completed RideLondon 100 in support of Metabolic Support UK in August, and who raised an incredible £1,190 for us!
Not to be forgotten are the many other fundraisers, who have supported us throughout the year with bake sales, sporting challenges, Christmas card sales and more! We appreciate every single penny we receive, and your donations always make a huge difference to supporting vital services that help patients and families with Inherited Metabolic Disorders. Thank you!
Last year, Metabolic Support UK were a team of 5. Now, we’re a team of 11! In March, we welcomed our new Finance Administrator, Andrea, to the team. This was followed by Jess, our Core Services Manager and Maggie, our Marketing and Fundraising Officer, in April. Then in July, we welcomed Pushpa, our Patient Access to Diagnosis and Treatment Researcher to the team; in September, our Research and Administrative Officer, Bruce; and finally, in November, our NextGen Project Officer, Sally!
In addition to that, we have 10 amazing new Ambassadors, who will be supporting Metabolic Support UK through fundraising and awareness raising in their locality.
By having more people on the team, we hope to reach more patients and families with Inherited Metabolic Disorders and develop further projects to support you as best possible and to raise awareness about IMDs.
For the first time this year, we held a Patient Day at Manchester Science and Industry Museum! We were delighted to see old faces, and some new ones too, and to give everyone the chance to meet the team and each other! It was also a great opportunity to hear of how we can be of more support to you and for you to hear about some of the ways we can help you as well. We hope to run a similar event in the near future and will be releasing details about our next event soon!
2018 has been incredible for Team Metabolic. Nevertheless, we are excited for 2019 and to reach more patients and families with Inherited Metabolic Disorders; to continue to raise more awareness of IMDs; and to develop further projects to support you.
We hope you all have a great start to 2019 and that it is a great year for you all!