Kate and Laura’s Valentine’s Fun Run!

Mar 15
Laura and Kate at the Valentine’s Fun Run! At Metabolic Support UK, we have a number of London Marathon places to offer our supporters each year. In return for a marathon place, our runners agree to fundraise for us! Our London Marathon runners have done so many different fundraisers over

Meet the Marathon Runner: Ross Fitzpatrick!

Mar 08
On Sunday 28th April, 19 supporters of Metabolic Support UK will be taking to the streets of London for the London Marathon! We are always in awe of our incredible marathon runners and their commitment to train, run and fundraise in support of Metabolic Support UK, whatever the weather! In

Pancake Day Guest Post: Nutricia Metabolics

Mar 01
We are delighted to share another guest post from our friends at Nutricia Metabolics: the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet. Through their regular guest blog, they share the latest news and developments in the area of Inherited

Meet the Marathon Runner: Sean Barrie-Rafton!

Feb 22
On Sunday 28th April, 19 supporters of Metabolic Support UK will be taking to the streets of London for the London Marathon! We are always in awe of our incredible marathon runners and their commitment to train, run and fundraise in support of Metabolic Support UK, whatever the weather! In

A Little Night of Music for Anna

Feb 15
On Saturday 19th January, the Keighley family brought friends, family and their local community together to fundraise for Metabolic Support UK and to celebrate the life of Anna, their daughter, who very sadly died of GM1 Gangliosidosis, aged 1. They organised a classical concert music, which proved to be a

February Guest Post: Nutricia Metabolics

Feb 08
We are delighted to share another guest post from our friends at Nutricia Metabolics: the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet. Through their regular guest blog, they share the latest news and developments in the area of Inherited

Meet the London Marathon Runner: Kate McElroy!

Feb 01
On Sunday 28th April, 19 supporters of Metabolic Support UK will be taking to the streets of London for the London Marathon! We are always in awe of our incredible marathon runners and their commitment to train, run and fundraise in support of Metabolic Support UK, whatever the weather! In

Meet the London Marathon Runner: Mike Allen!

Jan 25
On Sunday 28th April, 19 supporters of Metabolic Support UK will be taking to the streets of London for the London Marathon! We are always in awe of our incredible London Marathon runners and their commitment to train, run and fundraise in support of Metabolic Support UK, whatever the weather!

January Guest Post: Nutricia Metabolics

Jan 16
We are delighted to share another guest post from our friends at Nutricia Metabolics: the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet. Through their regular guest blog, they share the latest news and developments in the area of Inherited

Tips on Keeping Well this Winter

Jan 09
It can be a nightmare trying to avoid bugs and colds in winter. And it can be even trickier when you or your child has a low immune system. In the most recent issue of our Metabolic Matters magazine, we shared some tips on staying well this winter, which we

New Year’s Resolutions to Support Metabolic Support UK

Jan 02
Christmas and the New Year are over and life is starting to  get back to normal. Over the festive season, you may have come up with a few New Year’s resolutions. We have a few of our own and some suggestions for you, if you’re looking for more ways to

Goodbye 2018 – Metabolic Support UK’s Year

Dec 21
It’s been quite a year for the Metabolic Support UK team! Many changes have been made but most importantly, we have been able to reach more and more patients and families this year with a new more inclusive name; a larger team to travel across the UK to meet patients

December Guest Post: Nutricia Metabolics

Dec 13
We are delighted to share another guest post from our friends at Nutricia Metabolics: the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet. Through their regular guest blog, they share the latest news and developments in the area of Inherited

A-Z of Fundraising Ideas: D

Dec 07
Continuing our blog series of fundraising ideas, today is brought to you by the letter D!   Whether you’re a first time or regular fundraiser, we all need a little inspiration sometimes. So, to give you a helping hand, we are putting all of our favourite fundraising ideas together in

Manchester Patient Day – What a Day!

Nov 16
Our 2018 Patient Day took place at Manchester Science Museum. Around 60 families and patients with Inherited Metabolic Disorders gathered to meet each other; hear about our new support services; and explore the incredible Manchester Science Museum! After picking up their name badges, goodie bags and fuelling up on tea

National Baking Week – Ready, Steady, Bake!

Oct 19
From Monday 15th – Sunday 21st October 2018 it is National Baking week! National Baking Week is a great week to celebrate the cherry bakewell, the chocolate brownie and the unforgettable gooey chocolate chip cookie! However, if you have an Inherited Metabolic Disorder, you may not be able to indulge

#MyMetabolicLife

Oct 01
October has arrived – where has the year gone! Despite the year rapidly marching on, there is still time for a social media challenge!   This October, we’re challenging you to a 32-day photo challenge! For this challenge, we’re asking you to take a picture of a different theme each day,

Jeans for Genes Day

Sep 17
This week on Friday 21st September, it’s Jeans for Genes Day! This day is the annual fundraising event for Genetic Disorders UK, which aims to raise awareness about genetic disorders and the impact they have upon families and patients. Get involved by sharing your story and showing off your best denim!

September Guest Post: Nutricia Metabolics

Sep 11
We are delighted to share another guest post from our friends at Nutricia Metabolics: the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet.  Through their regular guest blog, they share the latest news and developments in the area of Inherited

Top 10 Tips for Starting University with an Inherited Metabolic Disorder

Sep 07
Kids are now back to school and soon enough university students will go back to their studying as well! For many young people, the step between university and high school can be huge. But for university students with an Inherited Metabolic Disorder, it can be an even bigger step with there

FUNDRAISING: A Metabolic Mile for Oscar

Aug 31
Here at Metabolic Support UK, we are blessed to have some wonderful supporters. During Metabolic Disorders Awareness Week 2018, we launched our Metabolic Mile campaign. We were amazed by how many of you took on a Metabolic Mile to show support and solidarity Sam Marshall and John Burniston. Credit: John

Preparing for School – Alison’s Tips

Aug 23
Leaving your child in someone else’s care is a stressful time for any parent. But leaving a child with an Inherited Metabolic Disorder at the school gate comes with an additional set of worries and concerns.   In this blog post, teacher and mum, Alison Hardy, shares her experience of

August Guest Post – Nutricia Metabolics

Aug 06
We are delighted to share another guest post from our friends at Nutricia Metabolics: the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet.  Through their regular guest blog, they share the latest news and developments in the area of Inherited

Become a Friend of Metabolic Support UK!

Jul 30
Today, the 30th July,  it is International Friendship Day. To celebrate this special day, we are launching our new Friendship Scheme!   Join our Special Community: The Friendship Scheme is a new way to get involved with Metabolic Support UK and includes  lots of new benefits! Our Friends are vital

Jess’s Rainbow Ball

Jul 26
On Friday 25th May 2018, Jess Allamby, an incredible supporter of Metabolic Support UK, held a rainbow ball in memory of her son Ethan and to raise money for Metabolic Support UK. The Metabolic Support UK team were invited to attend this wonderful event and were so pleased to be

Metabolic Disorders Awareness Week 2018!

Jul 16
It’s just over a week since Metabolic Disorders Awareness Week 2018! For Metabolic Disorders Awareness Week, we had plenty of plans on the cards! From our parliament event, where we officially relaunched as Metabolic Support UK, to the hundreds of people who took on the Metabolic Mile, it was a

Charlotte, Richard and Emily’s Metabolic Mile for Henry

Jul 07
For this year’s Metabolic Disorders Awareness Week, we encouraged our fantastic metabolic community to take on a Metabolic Mile to raise awareness, have fun, and make the most of the glorious sunshine!  Charlotte and Richard tell us all about their Metabolic Mile with their one year old daughter Emily, and why

JUNE GUEST POST: Nutricia Metabolics

Jun 25
We are delighted to share another guest post from our friends at Nutricia Metabolics; the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet.  Through their regular guest blog, they share the latest news and developments in the area of Inherited

10 Reasons to do the Metabolic Mile!

Jun 21
Recently we told you about our campaign for Metabolic Disorders Awareness Week 2018: the #MetabolicMile! For this, we’re asking everyone to complete a mile in any way of their choice, to show solidarity and support for families and patients living with Inherited Metabolic Disorders. If you’re still unsure of whether

Take on the Metabolic Mile!

Jun 14
Metabolic Disorders Awareness Week is coming up soon! This year’s awareness week is taking place from Monday 2nd July to Sunday 8th July. One of the many things Metabolic Support UK have planned for the week is the Metabolic Mile, to help raise awareness about Inherited Metabolic Disorders and how

Tips on Keeping Well this Winter

January 9, 2019

It can be a nightmare trying to avoid bugs and colds in winter. And it can be even trickier when you or your child has a low immune system. In the most recent issue of our Metabolic Matters magazine, we shared some tips on staying well this winter, which we

Read More

Metabolic Disorders Awareness Week 2018!

July 16, 2018

It’s just over a week since Metabolic Disorders Awareness Week 2018! For Metabolic Disorders Awareness Week, we had plenty of plans on the cards! From our parliament event, where we officially relaunched as Metabolic Support UK, to the hundreds of people who took on the Metabolic Mile, it was a

Read More

Charlotte, Richard and Emily’s Metabolic Mile for Henry

July 7, 2018

For this year’s Metabolic Disorders Awareness Week, we encouraged our fantastic metabolic community to take on a Metabolic Mile to raise awareness, have fun, and make the most of the glorious sunshine!  Charlotte and Richard tell us all about their Metabolic Mile with their one year old daughter Emily, and why

Read More

10 Reasons to do the Metabolic Mile!

June 21, 2018

Recently we told you about our campaign for Metabolic Disorders Awareness Week 2018: the #MetabolicMile! For this, we’re asking everyone to complete a mile in any way of their choice, to show solidarity and support for families and patients living with Inherited Metabolic Disorders. If you’re still unsure of whether

Read More