Blog

It can be a nightmare trying to avoid bugs and colds in winter. And it can be even trickier when you or your child has a low immune system. In the most recent issue of our Metabolic Matters magazine, we shared some tips on staying well this winter, which we also want to share with […]

For this year’s Metabolic Disorders Awareness Week, we encouraged our fantastic metabolic community to take on a Metabolic Mile to raise awareness, have fun, and make the most of the glorious sunshine!  Charlotte and Richard tell us all about their Metabolic Mile with their one year old daughter Emily, and why raising awareness of Inherited Metabolic […]

We are delighted to share another guest post from our friends at Nutricia Metabolics; the leading provider of medical nutrition products and source of dietary information for patients following a low protein diet.  Through their regular guest blog, they share the latest news and developments in the area of Inherited Metabolic Disorders, along with tasty […]

Sunday 22nd April 2018 saw the 38th London Marathon take place. Around 41,000 runners took to London’s streets to complete the 26.2 mile course of the world’s most iconic Marathon!  And 15 of those fantastic runners made up Team Climb!  Despite the race being the hottest in London Marathon history (at 24 degree heat!), our […]

We are delighted to share another guest post from our friends at Nutricia Metabolics; the leading provider of medical nutrition products and a source of dietary information for patients following a low protein diet.  Through their regular guest blog, they share the latest news and developments in the area of Inherited Metabolic Disorders, along with […]

Continuing our blog series of fundraising ideas, today is brought to you by the letter C! Whether you’re a first time or regular fundraiser, we all need a little inspiration sometimes. So, to give you a helping hand, we are putting all of our favourite fundraising ideas together in a handy series of blog posts! […]

With two months to go until the London Marathon, our 17 fantastic Team Climb gold bond holders are busy planning their training and fundraising activities.  Melvyn has agreed to share his training journey as he prepares for the big day on 22nd April 2018, follow his story here! Eight weeks away from the start line […]

We are delighted to share another guest post from our friends at Nutricia Metabolics; the leading provider of medical nutrition products and a source of dietary information for patients following a low protein diet. Through their monthly guest blog, they share the latest news and developments in the area of Inherited Metabolic Disorders, along with tasty […]

With four months to go until the London Marathon, our 17 fantastic Team Climb gold bond holders are busy planning their training and fundraising activities.  Melvyn has agreed to share his training journey as he prepares for the big day on 22nd April 2018, follow his story here! This will be my training blog for […]

We are delighted to share another guest post from our friends at Nutricia Metabolics; the leading provider of medical nutrition products and a source of dietary information for patients following a low protein diet. Through their monthly guest blog, they share the latest news and developments in the area of Inherited Metabolic Disorders, along with tasty […]

Ian is 30 and lives with A-Typical Familial Partial Lipodystrophy.  Through social media, he met Natalie who shared the same rare mutation of the condition.  Despite Ian living in the UK and Natalie in the USA, they formed a very close bond.  Natalie sadly passed away this year, aged 40.  In this moving post, Ian pays […]

Crunching leaves. Carved pumpkins. Giggling children. This can only mean one thing – it’s Hallowe’en! At Nutricia Metabolics we love celebrating with food. Our feature recipes this month, Mixed Fruit Brack and Carrot Cake, are a true taste of Hallowe’en. Our Low Protein Mixed Fruit Brack is delicious served on its own or toasted with […]

Reece Blelloch! We were absolutely blown away by the amazing response to our very first Metabolic Hero campaign!  What started off as a seed of an idea; to provide a platform for you to tell us all about the special people who make a difference, and celebrate these unsung heroes within our metabolic community, turned […]

Going from school to university can mean living independently for the first time, moving to a new town, city (or even country!), meeting lots of new people and experiencing the ‘student lifestyle’ of studying and partying in equal measure!  Making all of these changes when you have a medical condition to manage brings extra challenges, […]

Meet Cooper.  Cooper is a strong, three year old boy.  If you saw Cooper on the street you would not know that he battles a life threatening condition. At four and a half months old Cooper was vomiting a lot and we assumed that he had an ear infection or strep throat. I took him […]

We are delighted to share another guest blog from our friends at Nutricia Metabolics! With the sun finally making an appearance, it’s time to switch your low protein lunches for something fresh and colourful – our featured recipe this month is a low protein summer salad that you can mix and match 3 ways to […]

We love to hear about all the fantastic fundraising activities and events that are held by our amazing community.  From bake sales to wing-walking, we are constantly in awe of the efforts that people go to for Climb.  As a small team with a huge job supporting families worldwide with 445 Inherited Metabolic Disorders, we […]

CONGRATULATIONS TEAM CLIMB 2017 – YOU DID IT!! On Sunday 23rd April, our 18 amazing Climb Golden Bond holders completed the London Marathon! The whole day was incredible with an electric atmosphere, and we couldn’t have asked for more from Team Climb.  This fantastic, inspirational group of people spent many months training, overcoming injuries and […]

Easter is just around the corner and it can be a tricky time of year for families with children that can’t eat chocolate eggs.  No-one likes to feel left out, so we have searched the web and rounded up 10 of our favourite chocolate-free Easter gifts: 1.Lego Easter Chick ~ £12.95 from Amazon     […]

The fourth of August 2016 changed our lives forever.  At 04.04am Thomas Wesley Jackson was born and before we knew it we were going home that evening with our new baby.  The days that followed were scary, amazing, and sometimes overwhelming.  As first time parents we were trying and doing our best to love, care […]

Continuing our Day in the Life feature, giving an insight into the work we do here at Climb, and showcasing the different roles that the team performs, their aspirations, celebrations and the challenges that they face. Today we are putting our Senior Family Advisor Rachel Evans in the spotlight!  Many of you will know Rachel as she is […]

Tuesday 28th February saw the 10th annual Rare Disease Day; a day for raising awareness of the thousands of rare diseases that affect 3.5 million people in the UK alone. With the theme of research, and the slogan, ‘With research, the possibilities are limitless’, Rare Disease Day 2017 called for researchers, universities, students, companies, policy […]

Poppy is our youngest daughter. She is a two year old little girl born on bonfire night 2013 and at Christmas 2015 she was diagnosed with Hyperornithinemia Hyperammonemia Homocitrullinuria or HHH. In the beginning Poppy developed well, putting weight on as expected. She smiled, rolled over, crawled and stood when expected and was a ‘well’ […]

Continuing our blog series of fundraising ideas, today is brought to you by the letter B! Whether you’re a first time or regular fundraiser we all need a little inspiration sometimes, so to give you a helping hand we are putting all of our favourite fundraising ideas together in a handy series of blog posts! […]

Continuing our Day in the Life feature, giving an insight into the work we do here at Climb, and showcasing the different roles that the team performs, their aspirations, celebrations and the challenges that they face. Today we are putting our Development and Engagement Co-ordinator Julie Kempster in the spotlight! With her bubbly personality and fantastic baking […]

Our daughter Beatrix was born a few days early and was 5lb 8oz. The midwives were very happy with her and we were sent home the same day. Being our first child we were very anxious and worried about all the normal things new parents do. I can remember when the midwife came to carry […]

We are often contacted by patients who have been denied access to treatments from which they feel they could benefit.  Here are some practical things that you could consider doing to raise this issue and campaign for change. Contact your local MP As elected representatives in Parliament, MPs are able to take up issues on […]

With advent looming, it’s time to start getting excited about opening up those 24 little windows…but what if your child can’t eat chocolate? Luckily, all sorts of alternative calendars are springing up each year, with everything from candles and jewellery to coffee and pork scratchings!  We’ve rounded up 9 of our favourite non-chocolate advent calendars […]

Here at Climb HQ, we get loads of calls from lovely people who want to raise money to support us, but don’t know where to start. Whether you’re a first time or regular fundraiser we all need a little inspiration sometimes, so to give you a helping hand we are putting all of our favourite […]

Welcome to our new Day in the Life feature which gives an insight into the work we do here at Climb HQ, showcasing the different roles that the team performs, their aspirations, celebrations and the challenges that they face. We’re kicking off the series by putting our Research and Information Officer Helen Morris in the spotlight! […]

When I was asked if I could note some thoughts on my recent London Marathon experience (what do you mean, I haven’t mentioned it?), I initially struggled to think what would be of interest to people who would read them. But upon reflection maybe, just maybe, someone will sit there and think “I can do […]

Emily tells us of her 2016 London Marathon experience. Let’s just say, it wasn’t as easy as I thought it would be! In June 2015, I foolishly thought that because I was able to run half marathons, that a full marathon wouldn’t be that difficult! ……..Naive, foolhardy and over confident. I was ecstatic to be […]