We have decided to start a Galaxy Tribute Fund as a memorial to our beautiful daughter, Anna,
who died aged two years and two months of bronchopneumonia secondary to Tay Sachs
Anna was sweet-natured and tolerant in the face of her many difficulties. During the final few
months of her life, her only voluntary movements were lifting and turning her head slightly, and
changes in facial expression. Her eyesight was poor. She was fed by a nasogastric tube, as she
was unable to swallow, and the upper lobe of her right lung was permanently congested.
Despite these things, Anna still managed to find enjoyment in life. She loved music, being
sung to, the sound of people talking, cuddles, and walks in her buggy whilst looking up at her
favourite leaves. She was always happiest when we were at home in familiar surroundings and
she was able to sleep in her own comfy cot at night. She communicated her likes (and dislikes!)
through a wide range of subtle changes in her facial expression. Rarely, she would actually cry
or smile, which must have taken a huge amount of effort. Our brave little girl managed a smile
at her musical mobile just a few days before she died.
We hope that this Galaxy Tribute Fund will help other brave children with metabolic disease
and their families, and serve as a fitting memorial to our precious Anna.
Sinead Summers and Nick Driver
Total Amount Raised so far: £2,046